Docs still looking at me as a very rare odd IBM condition, Docs not seen anyone like me i'm showing so many problems that seem IBM and Mito Mitochondrial related, no meds have ever helped steroids IVIG Treatment all EMG Tests are wrong high CPK.muscles twitch, muscle loss, hair loss, choking, chronic fatigue, carpel tunnel, 0 energy, cant walk, teeth fall out, under dentist she never seen anyone with this problem i might get sent to a periodontal specialist, sweat on any exertion urinate a LOT. Eye lid droop, cramp in all fingers cramp in legs you name a problem i got it.
MY GENES Genetics Mitochondria, my first muscle biopsy 2014 has been looked at again and Newcastle specialist muscle centre say mito so gene screening was done no single isolated mutation was found so is it mito or is it IBM ? All i know is how rotten i feel 24/7 docs think im showing as having both conditions. a one off in the whole world. seeing what a Professor Wharton Sheffield Uni and Hospitals can come up with now
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